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Description

Abstract: The Patient-Centered Outcomes Research Institute (PCORI) has funded infrastructure development and demonstration studies in patient-centered comparative effectiveness research through the National Patient-Centered Clinical Research Network (PCORnet). The network encompasses 13 Clinical Data Research Networks and 20 Patient Powered Research Networks. The present phase of the program includes support to add several health data networks to this large, collaborative initiative, which is designed to link researchers, patient communities, clinicians, and health systems in productive research partnerships that leverage the power of large volumes of health data maintained by the partner networks. This tutorial will demonstrate the range of architectures deployed, the informatics tools developed, and the many study designs adopted in research through this infrastructure. Studies range from large longitudinal observational studies, pragmatic clinical trials conducted within delivery systems, rapid-cycle research in concert with health systems and plans, and surveillance studies across geographic areas and over time. The panel will highlight significant accomplishments across the PCORnet community.

Learning Objective 1: To define and describe patient-centered outcomes research (PCOR), comparative effectiveness research (CER), pragmatic clinical trials, and “natural experiments”.

Learning Objective 2 (Optional): To define the infrastructure requirements for large scale PCOR and CER and to describe the means by which PCORnet addresses these requirements.

Learning Objective 3 (Optional): To discuss a number of exemplar studies undertaken through PCORnet and explain the unique contribution of the network to the study in each case.

Learning Objective 4 (Optional): To describe informatics and technical tools developed and refined through collaboration in PCORnet.

Authors:

Anthony Solomonides (Presenter)
NorthShore University HealthSystem

Abel Kho (Presenter)
Northwestern University

Charles Bailey (Presenter)
Children’s Hospital of Philadelphia

Katherine Kim (Presenter)
University of California Davis

Maryan Zirkle (Presenter)
Patient-Centered Outcomes Research Institute

Shayna Barbash (Presenter)
Patient-Centered Outcomes Research Institute

Presentation Materials:

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