Description

Abstract Body: Electronic patient-reported outcomes (ePROs) gather how treatments improve patients’ functioning and generally affects their quality of life. Growing evidence suggests that collecting PROs improve symptom detection and correspondingly, yield to improved clinical outcomes. Therefore, health care organizations are increasingly interested in the collection and integration of ePROs into electronic health records (EHRs) for clinical care, quality improvement, and research. Incorporating PROs into EHRs and tracking responses within clinical care workflows allows for a more comprehensive view of the patient experience and makes these data available for a wide range of stakeholders (clinicians, ancillary staff, quality improvement analysts, researchers, etc.). Traditionally, various PRO measures may be collected during the course of clinical care, but these data either have not been included or are included in a limited scope in enterprise research data warehouses or federated data research networks such as the Patient-Centered Outcomes Research Institute’s National Patient-Centered Clinical Research Network (PCORnet CDRN). The broader inclusion of PROs could better inform large-scale comparative effectiveness research as well as the translation of those research results into clinical practice through leveraging informatics tools and analytical approaches.

Authors:

Umit Topaloglu (Presenter)
Wake Forest Baptist Medical Center

Arlene Chung (Presenter)
University of North Carolina at Chapel Hill School of Medicine

Keith Marsolo (Presenter)
Cincinnati Children's Hospital

Ajay Dharod (Presenter)
Wake Forest Baptist Medical Center