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Description

Abstract: We examined the demographic profile of patients in a research permissions registry, containing patient portal users with explicit research preferences on future contact and biobanking. Results show significantly lower odds of volunteerism in minority populations. Although patient portals can be more efficient for recruitment, researchers have to be cognizant of, and proactively address, potential selection bias when using such tools.

Learning Objective 1: Disparities in use of EHR patient portals for research

Learning Objective 2 (Optional): Factors influencing use of EHR patient portals for research volunteerism

Learning Objective 3 (Optional): Caveats of using EHR patient portals research opt-in permissions

Authors:

Jihad Obeid (Presenter)
Medical University of South Carolina

Azza Shoaibi, Medical University of South Carolina
James Oates, Medical University of South Carolina
Melissa Habrat, Medical University of South Carolina
Leslie Lenert, Medical University of South Carolina

Presentation Materials:

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