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Abstract: ARCH, Accessible Research Commons for Health, is a member network of the Patient Centered Outcomes Research Institutes’ PCORnet. Our network enables live cohort-finding queries using the Shared Health Research Informatics Network (SHRINE) platform, which links together data warehouses across institutions. Unfortunately, more detailed preparatory-to-research analyses are frequently necessary at this stage. Here, ARCH has developed a methodology, technical and regulatory, enabling researchers access to data sets from our institutions directly and with minimal regulatory delays.

Learning Objective 1: After participating in this activity, the participant will be better able to implement dataset sharing technologies, with regard to both technical challenges and concerns about data privacy and security.

Authors:

Jeffrey Klann (Presenter)
Harvard University School of Medicine

Stanley Boykin, Boston Children's Hospital
Margaret Vella, Harvard University School of Medicine
Sebastian Schneeweiss, Harvard University School of Medicine
Douglas Macfadden, Harvard University School of Medicine
Marc Natter, Boston Children's Hospital
Sarah Weiler, Harvard University School of Medicine
Kenneth Mandl, Harvard University School of Medicine
Shawn Murphy, Partners Healthcare

Presentation Materials:

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